Archives

2008.11.18:
2008.11.12: Check Me Out
2008.11.08: Grateful and Praying
2008.10.27:
2008.10.24: Escaping Pneunomia
2008.10.23:
2008.10.14: A Working Immune System/A Mixed Blessing
2008.10.05: Remicaid Reaction
2008.09.24:
2008.09.16:
2008.09.08: Sick Again
2008.08.24: Happy Birthday Little Man!!!
2008.07.14:
2008.06.28: Remicaid Continues to Be Necessary
2008.06.12: Our Superhero
2008.05.21: Prayers are Healing
2008.05.19: Powerful Prayer/Keep Them Coming
2008.05.17: Prayer Request For Remicaid Infusion
2008.05.12: Scope Reveals Worsening Condition
2008.05.08:
2008.05.02:
2008.04.30: No Remicaid, No Relief
2008.04.24:
2008.04.22:
2008.04.15: Holding and Hoping
2008.04.07: Improvement allows for us to Stop TPN
2008.04.04:
2008.04.01: Seems to Never End
2008.03.29:
2008.03.25:
2008.03.18: Prayers are Needed
2008.03.13: Steroids Help but Not Quite Enough
2008.03.07: Scope Shows Worsening Colon/Ulcers
2008.03.05: Pain Continues/Scope Gets Moved Up
2008.03.02: Suffering Continues
2008.02.29: Hospital Frustration and Realization/Never Easy
2008.02.26: Back In The Hospital
2008.02.24: The Flu has Hit
2008.02.22: Treading Along
2008.02.18: Disney Trip Was Wonderful/Illness and All
2008.02.04: DISNEY here we come!
2008.01.31: Just Under A Week to Go
2008.01.15: Exhaustion Takes over - Sleep Is Needed
2008.01.12: At Least The Want is There for Food
2008.01.07:
2008.01.03: A New Year New Hope
2007.12.16:
2007.12.12:
2007.12.04: Blessings always come in Great Disguise
2007.12.03: Skin, GI Issues Arise AGGGGGAIN
2007.11.29: Yeah for Jackson
2007.11.28: 365 Days Post Transplant Number Two
2007.11.26: New Doo Almost a New Year
2007.11.23: IVIG Infusion/Rash?
2007.11.19: Hoping to Hang On To Improvement
2007.11.12: Things are Stable/Good
2007.10.30:
2007.10.28:
2007.10.26: We're Improving
2007.10.23: Status Quo - Which is Good
2007.10.18: New Meds Started
2007.10.17: GVH?
2007.10.15: Another Scope Behind us
2007.10.14: Tomorrow Scope, We ask for Prayers
2007.10.11: WE NEED YOUR PRAYERS
2007.10.10:
2007.10.03: Up the Steroids, stop the meds, continue and Pray
2007.10.01: Labs Not Cooperating
2007.09.28: What A Little Love and Support Can Do for You
2007.09.28: Relief was Short Lived
2007.09.25: Things are Status Quo
2007.09.23: A Little Progress Goes a Long Way
2007.09.20: A Plan, But not Without Reservation
2007.09.19:
2007.09.17: Thank You God
2007.09.16: Wizard of OZ and Praying Continues
2007.09.15: Scope is Done, Now We Wait and Pray
2007.09.13: Everyone Please Pray for Simon
2007.09.08: No Improvement
2007.09.05: UPDATE FROM GI TODAY
2007.09.04: Prayers are Asked of You Today
2007.09.02: The Infection Continues
2007.08.31: Virus Is Back
2007.08.24: Birthday Wishes for Our Little Man
2007.08.22: Splish Splash and Good Counts
2007.08.20: Its My Party and I laughed and had Fun
2007.08.15: Skin Infection Arises
2007.08.13: Cougars and the Heat
2007.08.09: UP DOWN UP DOWN
2007.08.07:
2007.08.04: Angels and Blessing All Around Us
2007.07.25: I'm So Sick of the Rollercoaster
2007.07.20: Reflection
2007.07.12:
2007.07.05: IDF Conf/Meeting our NEMO Family
2007.06.19: Things are Well, For the Most Part
2007.06.13: TPN goes well and Appetite Increases
2007.06.11:
2007.06.10: TPN Finally going
2007.06.09: Frustrated At Home
2007.06.08: Coming home on TPN
2007.06.08: Asking for a Small Special Prayer
2007.06.04: We pray its not Rotovirus
2007.06.02: Saying Goodbye and Holding Onto the Everyday
2007.05.30: Six Month Post
2007.05.30: Six Month Post
2007.05.26: Worries and Thoughts
2007.05.23: VNTRS Up and Down
2007.05.21:
2007.05.17: VNTRS stable
2007.05.14:
2007.05.09: God Hears Us
2007.05.08:
2007.05.03: Virus has Set In - Praying for it to Leave
2007.05.02: VNTRS holding Simon not Feeling Well
2007.04.29: A Beautiful Day...
2007.04.25: Simmys Smile
2007.04.20: Little Wonders
2007.04.18: A Small Bit of Relief
2007.04.16: I Don't even Know What to Title These Anymore
2007.04.13:
2007.04.06: Please Pray, Please
2007.04.03: Steven-Johnson Syndrome???
2007.04.01:
2007.03.31: Close Call and Prayers are Needed
2007.03.28: Our Dear Friend Received his Wings
2007.03.28: Counts Are Good
2007.03.22: Busy Week - Its all Good
2007.03.18: Same Ole' - Yet Not
2007.03.08: vntrs holding - Day 100+
2007.03.05: Day 100 Approaching - Wednesday March 8
2007.03.03: I had to Post This
2007.02.26: Skin Rash Escalates with a Vengence
2007.02.20: They Spread the LOVE for Simon
2007.02.07: Double Blessing Day
2007.02.05: Labs Hold Steady
2007.01.29:
2007.01.24: Back to Reality - Therapy Begins Again
2007.01.19: Counts Climb....
2007.01.15:
2007.01.11: VNTRs remain
2007.01.10: When Do Things Calm Down and Start the Upward Climb
2007.01.07: The Days Keep Moving Along
2007.01.03: Happy New Year - Goodbye 2006
2006.12.30: Simon Continues to Improve
2006.12.26: Coming Home.....
2006.12.25: Christmas Eve
2006.12.25: Amazing.....
2006.12.25:
2006.12.25: IVIG and IV Meds Keep us Spending X-mas at Childrens
2006.12.25: Christmas Will Be Delayed
2006.12.21: Chicago - We have Engraftment
2006.12.16:
2006.12.15: CT Results Show Skull Fracture
2006.12.14:
2006.12.12: ANC Surfaces
2006.12.09: The Locks are Gone
2006.12.06: Platlets are Needed Today
2006.12.06: Picture of "Jeans to Benefit Cure4Simon by KMZR Friends"
2006.12.06: G-Tube Continues to create Issues
2006.12.02: Chemo affects have kicked in
2006.12.01: Several updates combined into One
2006.11.27: The Long Week Begins With Gods Strength
2006.11.26: We're On Our Way
2006.11.21: We Broke out - for a Short Time
2006.11.18: Infection is Clearing - Yeah
2006.11.17: Childrens Welcomes Us Early
2006.11.15: Count Down
2006.11.11: A Night Out A Welcome Change
2006.11.06: Campath is Finished - YEAH!!!!
2006.11.04: Campath Takes Its Toll
2006.10.27: Testing for Transplant No @
2006.10.19: Port Placement Goes Beautifully
2006.10.18: Hi everyone. Just a quick
2006.10.13: Back to Transplant
2006.10.08: Counts Decline/Meeting This week
2006.10.08: Counts Decline/Meeting This week
2006.09.30: We're Back
2006.09.29: NIH Trip and Information
2006.09.12: We have a date. We
2006.09.05: Washington Here We Come
2006.08.24: B Cells are Gone
2006.08.21: ITS MY PARTY
2006.08.15: Rituximab Begins
2006.08.07: Please Say Your Prayers Tonight
2006.07.30: Gotta Love Everyday is a New Day
2006.07.25: If Your Going Through Hell.....
2006.07.20: Time Changes Nothing For Simon
2006.07.06: Its been awhile since I've
2006.06.21: Its The Simple Things
2006.06.13: June 12, 2006
2006.06.07: Pseudo Tumor is Back
2006.06.04: 36 May 31, 2006 at
2006.05.22: The Numbers Continue their Decline
2006.05.15: May 15, 2006 at 04:29 PM EDT
2006.05.10: The Number Remain
2006.05.03: Day +63 Post Transplant brings Disappointment
2006.05.01: May 01, 2006 at 09:08 PM EDT
2006.04.25: April 25, 2006 at 03:49 PM EDT
2006.04.21: April 21, 2006 at 10:14 PM EDT
2006.04.17: April 17, 2006 at 05:06 PM EDT
2006.04.13: April 13, 2006 at 10:06 PM EDT
2006.04.11: April 11, 2006 at 10:31 AM EDT
2006.04.09: April 09, 2006 at 11:01 PM EDT
2006.04.08: April 08, 2006 at 10:30 AM EDT
2006.04.04: April 04, 2006 at 11:57 AM EDT
2006.04.01: April 01, 2006 at 10:29 PM EST
2006.03.31: March 31, 2006 at 04:41 PM EST
2006.03.29: March 29, 2006 at 08:51 PM EST
2006.03.28: March 28, 2006 at 10:43 PM EST
2006.03.27: March 27, 2006 at 11:04 PM EST
2006.03.25: March 25, 2006 at 09:52 PM EST
2006.03.23: March 23, 2006 at 11:20 PM EST
2006.03.21: March 21, 2006 at 01:56 PM EST
2006.03.17: March 17, 2006 at 11:20 PM EST
2006.03.15: March 15, 2006 at 09:49 PM EST
2006.03.14: Day +12
2006.03.12: March 12, 2006 at 08:55 PM EST
2006.03.10: March 10, 2006 at 04:23 PM EST
2006.03.10: March 10, 2006 at 04:23 PM EST
2006.03.08: March 08, 2006 at 02:20 PM EST
2006.03.07: March 07, 2006 at 02:38 PM EST
2006.03.04: TRANSPLANT DAY 2
2006.03.02: March 02, 2006 at 10:08 PM EST
2006.02.28: February 28, 2006 at 05:18 PM EST
2006.02.25: February 25, 2006 at 03:50 PM EST
2006.02.24: HAPPY BIRTHDAY SIMON
2006.02.22: Day THREE of chemo
2006.02.22: February 22, 2006 at 09:21 PM EST
2006.02.17: February 17, 2006 at 10:00 PM EST
2006.02.17: Simon has been doing okay
2006.02.08: Happy Valentines Day to you all
2006.02.08: February 08, 2006 at 02:36 PM EST
2006.02.01: GUESTBOOK

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