Escaping Pneunomia

Well after a very restless night and a few scary moments, a page to the Hospital, a dark drive to get childrens motrin to replace the expired childrens motrin in our cabinet and alot of replacing simons position so he could drain his nose and breathe better, we woke up to alot more coughing and him moaning and groaning.  He had a fever last night and a slight one this morning so we headed down to Childrens to make sure he was ok.  He has eaten nothing for a day and a half and is drinking little so the g-tube is a blessing to get some calories and fluid in him.  It has not really helped due to the diarrhea as he is 12.7 kilos down from 13.8.  He was given an iv bolous of fluids and showed trouble breathing and his oxygen level was low so we started oxygen.  The docs heard fluid in his lungs so they were nervous of pneunomia and sent us for an x-ray.  There was signs of webbing in the left lung but it was not pneunomia but there definately is some fluid.  He was sent home on albuteral and a breathing aparatus for us to administer twice a day.  He will go back on monday for follow-up and pentamadine (to prevent pneunomia) providing all goes well over the weekend.  He still will not eat anything and the pain in his stomach when he does eat is intensified.  It really sucks to see that.  So going forward we have talked about changing one of his GI meds to vanco to see if that helps (pray to God it does) and I am trying to get into see a holistic type GI doctor to get on a diet/nutrition plan that will hopefully add to the aid of making this better.  Its a vicious circle we have been on.  We are no better off with this situation than we were last year this same time.  Our docs do not want Simon back at school until we get it under control, so who knows how long that will take.  Please pray for him and for us to find answers and make the right decisions. 

I'm off to begin a late movie night with the family.  ET "phone home" was the selection so I hope its well received and not too "scary" for the kids.  God Bless and look at all that you have been given even in the face of fear and the unknown there is joy and reason.  Try to find it.  God Bless.  Tracy