Remicaid Continues to Be Necessary
Well its been almost 4 weeks since our second dose of remicaid. I wish I could say all things are still great but simon started to show signs of the same cycle almost a week ago. His appetitie dropped and he has had increased stool that is now liquid. He has been gagging and vomitted this morning. Its really a hard reality to know that for whatever reason his system is overproducing something that sets all of this off. We talked last week about the fact that he has not grown in height or weight at all this year and what to do about it. Because he is not retaining alot of what he takes in and hes much more active its becoming a challenge to keep up with his calories. I find myself putting more formula through his g-tube. We return monday for another dose of remicaid. Its a bit disappointing to me to be honest. I really was hoping since he seemed to respond to some degree to the immunizations he first received, and has received his second round of 2 of them, that his body would be attempting to heal this GI stuff. Noone knows what is to come with all of this and that is a hard reality.
He is registered to start pre-k 3 in the fall through early childhood so we can only hope and pray that he will be able to attend that and grow with a peer group to manage how to be around other kids more and to make some new friends. We think he will love it. At any rate I ask for prayers that the remicaid continue to improve simons gi issues to a point where he won't be so dependant on it and for a special prayer for my aunt Donna who is not well in the hospital. Please keep us all in your prayers. Thanks and God Bless. Tracy and David
He is registered to start pre-k 3 in the fall through early childhood so we can only hope and pray that he will be able to attend that and grow with a peer group to manage how to be around other kids more and to make some new friends. We think he will love it. At any rate I ask for prayers that the remicaid continue to improve simons gi issues to a point where he won't be so dependant on it and for a special prayer for my aunt Donna who is not well in the hospital. Please keep us all in your prayers. Thanks and God Bless. Tracy and David
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