Our Superhero

Our little superhero. Well its been a bang to the summer here. Simon is very into the water of the hot days and its really hard now at his age to keep him out of sprinkers, pools and the like. I have a hard time watching him in the water as my fear for illness from the water is still weighted but its also hard at almost 3 to not let him be a boy. And all boy he is. We had a impromptu pool, water gun, slide splash bbq with our neighbors which was loads of fun for all the kids and adults too. Simon loved playing with the girls and a few other boys and being in a pool. We got home at 9 with baths to have and calming to engage in but managed to get all settled by 9:30. Simon and the girls had a blast. With our first week of summer underway we have had a few issues and Marriana almost broke her nose and jaw falling off a piece of playground equipment after t-ball last night but she is a trooper and ok, very bruised but handling it like the amazing child she is. So I am ready for next week to be calmer.

Simon is doing ok. He is stable with the steroids and Ihope to drop them next time we are in clinic but I'm in no hurry as he is ok. Stool is ok with the remicaid and we hope to hold off on another dose for 3 more weeks or so. I had hoped he be a bit better than he is but hes much better than he was and loving life so I'm going with it. I have to let him have fun and that is what I hope to give him. Please continue to pray that all things improve and that he is able to take in all summer has to offer and be healthy and strong.

He was evaluated for preschool and is set up for two programs of which we have to choose so I hope he will be safe and I can let go for a couple hours a day as he is ready and totally sharp to learn more. I wish everyone could meet him, he is so amazing. Please keep praying for total recovery and healing of a new immune system and gi system that works without medicine. thank you. God Bless. Tracy and David.