Powerful Prayer/Keep Them Coming
For all the prayers we asked of you we thank you for a day of infusions that went well. Simon did great Dave said (I was on a field trip with the girls - hard at times but I called the hospital 3 times to check in) and he was in his usual personality plus mode. Singing for the girls there all the t-ball cheers the girls sing at their games. He has become known as the D-backs biggest fan and mascot. Its cute. He also got to meet Bennie the Bull and a few luvables, which I'm sure was much more exciting for Dave than for Simon. He was proud of the Bennie the Bull signed autograph but not so much the girls. Guess dad can keep those. Anyway, labs looked good. They drew everything today. Our igg remains stable so that is good. His vntrs were drawn today as well as immunization titers to see if he shows any antibodies to the shots he got 3 weeks ago. We pray to see improvement in the stooling, vntrs that are all marrianas cells, and antibodies developed from the shots he received. He got a major high iv dose of steroids today and was extremely aggressive this evening. We will taper back to his oral dose tomorrow and hope to be able to start dropping that next week when we go back for pentamadine iv infusion (to prevent pneunomia). He will then return week after next for another iv dose of remicaid and so the course will continue until we can give him time. Time to show us what his body can do and how much we will be able to space out the remicaid. Hopefully we can get to at least every 8 weeks and beyond. Thanks for all your prayers. Please keep them coming. We believe so much in the power of prayer and in large doses. God Bless. Tracy and David
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