I can't even believe I am going to say this again but we are going to have another (mini) scope done on Monday to rule out infections in the colon. We have had a rough week. Simon started vomitting monday evening and continued through the night with dry heaves but also had milky stooling with blood in it all night long. He was out of it tuesday morning which sent us downtown for iv fluids, labs, stool studies and viral studies. So far everything has been negative, of course. We opted to bring him home and try to get fluids in him ourselves, which I think I've been able to do decently with alot of bolous feeds of special formula through his g-tube from 6:30 am until 10pm daily. He is hydrated but not eating much at all. So of course his weight is down. Still we are going to do this through the weekend and hope he continues to get a little better. He is very tired and poops out really easy. His skin too has had a rash that comes and goes and is very itchy. After the scope we will have answers or move forward probably with the remicaid drug to try and get him stabalized. Its been such a hard decision that we have discussed and sat on hoping things would improve. It is a long term committment to treatment and without really knowing long term side affects and it supressing his immune system even more its not an easy one to forge into. We ask that you continue to pray for him and for our family to have strength. This brings upon alot of stress and no matter how hard we try we are human, we get tired, we get impatient and sad. We pray the days ahead are bright and full of promise and good news. We will not find out about our immunization antibodies if they are present until after the 19th and if we do start the remicaid I think it really doesn't matter b/c he will be suppressed no matter what. I wish all you moms out there a beautiful mothers day. Relax, look around and just be thankful that no matter the situation you have been blessed to be a mom. Thanks for checking in. Please continue to pray. Tracy