Seems to Never End
Seems we are on another roller coaster ride with Simon. About 36 hours ago I would have said we were on our way to seeing some improvement but last night the vomitting started again. He actually had a solid stool late afternoon and then around 7pm he started throwing up and stooling at rapid rates. He continued at 11pm and slept but was changed a few times in the night and we are back to just liquid coming out of him. He is on just special formula today. One of the things is maybe his stomach is not emptying like it should so we are going to try erythromicin to see if we can move things along with the motility of the stomach. We are wondering also if this could possibly be something neurological causing him to vomit. He has had those psuedo tumors in his head before which made him throw up and I pray to God its not that. We are giving the antibiotic a few days before we look into scanning his head to make sure. He remains on iv nutrition and iv steroids that we are doing at home. I thought we were going to be able to get rid of them this week and start to taper the steroids but seems not now. Please pray for simon and for us to have the stamina and the strength to get through all of this and be in a better place very soon. Thanks and God Bless. Please check out a few new photos of our beautiful kids. Love Tracy
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