No Remicaid, No Relief
Just a quick note as I need to get some sleep. Isa was up throwing up last night and simon decided to just get up to keep us company and he never went back to sleep from 3 am. Anyway, this week at clinic simons labs looked pretty good. We decided after a long week and lengthy discussions not to go ahead with the remicaid. We felt his symptoms were not as bad as they were in February and we are really scared to give it to him. Of course since this decision his stooling has increased and today he went more than hes gone in a few days. His butt is now broken down again to where you can't touch it. Its like if you miss it one time and it sits in his diaper for 5 extra minutes thats all it takes, and I am constantly checking him. Doesn't matter how much cream you put on. So tonight he is uncomfortable and, of course, I question my gut as to not go with the remicaid. Just not sure what is right anymore. We ask that you pray for relief for Simon with this GI issue and for our dear friend Jacob with his skin issues. Seems our boys are having the hardest time of it. Thanks for checking in. Tracy
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