I am posting just to ask for prayers tonight. We have had a week of things increasing for simon in the stooling area and its all liquid. In addition to that the last two days hes had this little cough. I chalked it up to just a little tickle but his appetitie too decreased and tonight it seems the cycle may be starting over. He stood over the toilet vomitting. I am very sad and frustrated that none of the meds have worked at all and we seem to be back in the same place we were weeks ago. Since this has been going on since January only after a 3 month break from the october 12 weeks of this, we are coming to the realization that noone can fix this and we might have to live indefinately with it. It really is hard to watch someone so amazing go through so much day after day. Please pray that all of this is not cycling again and that we can find a way to heal simon. The remicaid drug gets dicussed everyday in this house but with it we discuss it possibly causing severe long term issues so what do we do? we still have not come to terms with that decision. Please put Margo in your prayers again too as she is back in the PICU with some pretty severe issues. We pray that all Gods children are healed. God Bless, hug your kids often and long. Tracy
Leave a comment