Pain Continues/Scope Gets Moved Up
Clinic visit today was longer than expected but just alot of waiting around. Labs are a bit messed up and not sure if its due to all the stooling or the TPN he is on but I'm hoping they start to straighten out. We skipped getting admitted today but are pushing up the scope to Friday. With all the stomach cramping and pain we felt the need to move it up and see what is going on inside so we might find some answers. So we are on the 36 hour of cleaning out his colon completely, which doesn't seem fair to a little boy who has had diarrhea for the last 4 weeks but it is necessary to get clean pictures and biospys of his insides. It won't be easy as he does ask us for food and helps himself to the pantry. Last night and today were especially hard since Simon was in alot of pain and up most of the night and complaining alot today. Its so hard to see him doubled over in pain repeating "my tummy, my tummy it hurts". Its not fair to him. Since there has been so much viral illness going around and our family has been the lucky recepients of at least two separate ones, now resulting in a sinus infection for both the girls and Dave seems a bit scratchy along with a mild case of pink eye for Isa, we are really ready to move past all of this and surge forward with alot of good vibes and positive energy. So tonight I ask for specific prayers from all of you that Simons scope goes extremely well, that there is NO signs of GVHD and that the inflammation seems to be claming down. We ask for prayers that NO immune suppressants will need to be used to calm his aching gut but that there are clear cut answers. Not even sure medically if this is possible but it is what we truly pray for. One good news so far is IGG is still up at 783 so for that we are thankful. Thanks for the prayers and keep them coming full force. God Bless Tracy and David
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