Disney Trip Was Wonderful/Illness and All
Well I finally and finding the time and energy to post regarding our trip. First off let me say a big thank you to Special Wish Foundation and Give Kids the World Village. The trip they put together for us left no stone unturned when it came to going to the parks and keeping everyone happy, fed and loving all the characters and activiites they had to entertain the kids. The kids enjoyed themselves. They loved all the theme parks and since we were given a special pass to go to the front of every line for rides and character photos the girls got to a point that if we had to wait for anything they wanted to know why. Spoiled little princesses. The girls did the bibbty bobbity boutique and felt like real princesses. Everyone throughout the park kept asking me if they were in the pirates and princess show. They looked beautiful. Simon loved seeing all the characters and going on the little rides and slides. We also especially loved the shamu show and the seal show at sea world. Like I said we had tickets for anything you would want to do and in addition had things at the villa every day and night. I have posted a few photos but the day we got there our digital camera broke so we had to buy alot of disposable cameras which are not developed yet. We also lost footage to the first 2 day in our video camera so not sure what we will end up with. Our trip was good but also carried stress due to Simons reoccurring diarrhea and skin issues. Its not your typical healthy kid diarrhea and last time he has it it lasted 12 weeks and he had to go on immune suppressants to stop it. That sets us back every time for seeing how his immune function is and if it will work properly. So we ended up at a childrens hospital in Orlando one day. He is down 5+ pounds and that is huge on him. NOTHING will say in him not even pedilyte. So today we go to clinic. Hopeing he is not dehydrated and does not get admitted. Please continue to pray for him to regain his GI system and to have full healing so we can move forward. It has been 3 months since the last flair up. Our hope is that over time he will have fewer and fewer. Its hard b/c noone knows. The good NEMO cells in his blood and the bad NEMO cells in his gut and skin are fighting. And since 70% of your immune system is in your gut we are at a disadvantage here.
I have to run but I wanted to post something and a few photos. I hope to show more photos on this site and our cure4simon.org flickr photo site. It will take me at least a week to catch up on that. Thank you for sticking with us and keep praying, we need prayers stronger than ever right now. I wanted to welcome Baby Margo home. After the first 4 months of her life at Childrens she finally got to go home. Pray for strength for her to heal and her parents to tuff it through all the extreme medical care that is now placed upon them. God Bless Love Tracy and David
I have to run but I wanted to post something and a few photos. I hope to show more photos on this site and our cure4simon.org flickr photo site. It will take me at least a week to catch up on that. Thank you for sticking with us and keep praying, we need prayers stronger than ever right now. I wanted to welcome Baby Margo home. After the first 4 months of her life at Childrens she finally got to go home. Pray for strength for her to heal and her parents to tuff it through all the extreme medical care that is now placed upon them. God Bless Love Tracy and David
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