New Doo Almost a New Year

So how do you like my new cut? Mom did it yesterday. Pretty cute huh? Mom said it was getting too long and looking a bit wild. Me, I liked it but this is cool too. Well we spent the morning at clinic. I had to get pentamadine again. I really hate those port needles. I dread having it go into my chest and I'm definitely developing callous like skin around the site but I guess it beats the alternative of having to get stuck multiple times trying to find a good vein. I don't think I really have any. Mom was anxious about my vntrs so as soon as Kim and Dr. Duerst came in she asked them and they said the T and B were both 99% and my myeloid were in the 80s. I saw my moms face frown. We talked about it later and decided that if any other person had their numbers checked as much as I did it would probably fluctuate and the T and Bs were good so we are going with that feeling. I am getting a little vacation from clinic as we do not have to go back for three weeks. That has not happened in 5 months so we are excited to take the break and hope that all stays boring for us. I do have an open sore in my mouth that mom is concerned about so we are washing it with mouthwash stuff twice a day so say a pray that that does not get infected. My stooling is about the same so hoping it stays that way and my skin is drying up but new ones are forming too so we are never sure what course it will take. Pray it just resolves and goes away. Well thank you for always checking in on me and praying for me. I will keep fighting to make you all proud and show you that your prays and caring does help me so much. Please keep my friends, Nicholas, Margo, Samuel, Connor, Rhys and all sick children in your prayer. Thanks Simon