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UP DOWN UP DOWN

WHEW, counts are in and they are up. YEAH. I'm starting to get a little crazy about these numbers and I realize its all in God's hands and I just can't do anything about it so I will relish in the next two weeks and keep my prayers going and let my faith be in him to heal Simon. No b cells were detected again. I was told none were detected in any of the kids this week so that might be lab error, who knows. Sometimes I wonder if our wonderful nurse practitioner trys to just keep me sane and make me feel better. Whatever the case I thank her for all her diligent work and feeding into my needs because she honestly keeps me hoping. We are lowering the cyclosporine to .5 twice a day. We are still .2 away from where we started it before we had to bump it to the sky but every 10th we go down is one step closer to getting off of it and letting the new immune system work. Simon is still miserably congested. He ate like a champ today though despite it all. Gotta take the good with the bad or vise versa. He and his sisters were having a ball tonight running around and playing and dancing to radio disney, they love that channel (frankly I know more of their songs than any for my own age) and we had a fun night. I hope tomorrow brings more healing. Continue to pray for our little man and his healing and huge donor cell numbers as we lower the immune suppressant. Keep all our NEMO boys in your prayers. Connor started his transplant in Cincinnati and he and Jacob are now there so pray for them and their families. Our cirlce grows.....Okay I have to go I still have to work but thank you to Dale for her two hours playing with my kids today it definately helped me get a head start on my night time work. God surely has blessed us with angels. God Bless. Tracy and David

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