Skin Infection Arises

Well we had a bit of a rough night last night with Simon and I should be exhausted but I can't seem to fall asleep tonight. Simon has been having some itching issues which are not unusual with his skin but it has gone to his groin area and last night he was miserable and threw up at midnight. He rolled and tossed all night long saying "mama it hurts" and grabbing down there. I spoke with the docs today and along with the hurt he has almost pimple like dots, and no appetite. They are thinking he may have a fungal skin infection as the bumps are in his areas where there would be moisture, providing he actually could sweat. Regardless this is where fungus would set in. We have started nystatin cream and upping one of his current meds dose and are hoping for relief. So far he is sleeping peacefully after being up all day with no nap, he should be exhausted. We ask for prayers that whatever is going on be resolved with the cream and move on. Please pray for that for him. Our prayers go out to all the boys undergoing this through transplant with affects and issues and for those who await transplant and for our dear family who still grieves for their son. We are all here together no matter what the situation, we all have sons with NEMO and we all should lean on each other no matter what. God Bless everyone that they may be strengthened.