Cougars and the Heat

I had hoped to post some photos today with Ryne Sandberg as we were invited to and attended the Kane County Cougar game today which they were playing Rynes minor league team and we were invited by his foundation Ryno Kid Care to join them but for the first time really I experienced first hand how much Simon cannot tolerate the heat because he cannot sweat it out of him. He pretty much took a plunge 20 minutes after we got there (the fact that he has been up since 6 am without a nap didn't help) but today was way too hot. We arrived late in hopes of making it to the end to meet, take photos with and get signatures from the great former Chicago Cub player but we just couldn't put Simon through it. So the things stayed for signature and we left. We hoped at the very least the heat might sock some of simons congestion out of him but we'll have to see. After some air conditioning, food and a much needed nap he was back to himself talking non-stop.

We will be celebrating his 2nd birthday this weekend with family and oh what a two years it has been. He is excited about it and his cake and the fact that is his birthday. He keeps saying "my birthday is coming" and then hums bob the builder song as that is what will be on his cake. too cute. We go back to stem cell for another iv infusion of meds on the 20th and vntrs so since we lowered his immune suppressant we pray they are still up. He is having diarrhea too so we hope that slows down as well.

Stay cool and next time your all sweaty and your body can do what its suppose to to cool off think of Simon and how it must feel to not be able to do that and all the heat stays inside. I can't imagine it and we need to figure out a way to keep him comfortable, the spray bottle isnt' cutting it. sounds like a cooling vest is in need, afterall he keeps telling us he wants to play soccer so ..... thats in our future. God Bless, keep praying. Thank you. Tracy and Dave