Angels and Blessing All Around Us

Well we have waited out almost 2 weeks to get to clinic on Monday and thats been pretty tough. I'm praying the numbers are way up of donor cells in every area on Monday and that the ivig Simon receives causes him no harm. We will have a long day at the hospital due to ivig and then he needs to get his g-tube changed out after that. He has had some signs of being very tired and some of his stooling is much looser indicating to me that something is going on, just not sure what. Marriana has a summer cold and just today Isabel and Simon are both stuffed up with runny noses and isabel is complaining of stomach aches. Simons appetitie has decreased but I am trying to give that the old "hes a two year old" talk and he has a stubborness that I can't seem to break. He eats when he wants and what he wants. I am adding a little extra pedisure for fluids and calories. I hope he has not lost weight.

So tonight we were blessed with a very special visit from Antionette and her mom Camille. Antionette is a 9 year old daughter of a friend of mine who has blown me away the last few weeks. She decided she wanted to do something for Simon and drew, colored and painted pictures and then taped them all over her house and told her mom to invite family and friends over to buy them so she could give something herself to Simon. Wow! What an amazing little girl to think so much of one little boy. Well tonight her and her mom came over with princess coloring packets for the girls and a motorized car (that was antionette's and they wanted someone special who would love it to have it) for Simon which he took to right away. He also loved Antionette from the second she walked in the door. The girls warmed up quick to her too as she kept asking them for hugs. She is a very loving, happy little girl who you could tell just loves kids. She was happy to hug and love up all three of our kids and it was a sight to see and bring tears to your eyes. Simon couldn't get enough of her laughing and hugging him. He is such a little flirt. She also brought a very touching, loving letter, and the money she raised from her artwork. Thank you so much for the warmth and love you brought into our home tonight. We feel so blessed to have such amazing people in our lives helping to make it all seem so "normal" and uplifting. Check out the photos Simon is loving the car and Antionette. {Please pray as we enter a new week that our numbers are up and stay up, that we stay infection free and that we can get through ivig without any skin reacations. Please keep Jacob in your prayers for healing and a break from the rough road he has been on and his parents, and for Connor and his family as they just begin this journey. God Bless. Tracy and David