Reflection

I was doing a bit of reflection the last couple of days as I am trying to get all our insurance things in order and apply for some things that might help with Simons ongoing medical issues and dental care and trying to figure out just how much the insurance is actually paying for all of this and I started to have to relive the early days of Simons illness and all that he and our family went through and I just got very teary eyed. We are blessed to be able to look back and feel we are at a better place in this journey. The road has been hard and we are starting to feel a little peace within in the hope that Simons donor cells are getting stronger and hopefully working to build and be able to fight off things for him. As I thought about all that he has been through and the early days, nights and weeks and weeks of pain he endured and all the nights spents holding him staring out that hospital window praying for a miracle our family is so lucky to be at this spot right now and we do not let one day go by that we don't reflect on that or appreciate all the small things in life daily. We have been fortunate to do some fun things this summer, little trips and even going to the beach last weekend in MIchigan (which was just a day of stress because of worry and Simon stayed confined to my arms most of the two hours we were there) but it felt like maybe we were getting there to where in 3 years he can really enjoy stuff like that. Its very hard to explain all the caution that goes into a normal day in the life for us but all the people who have been there for us have really enriched our lives beyond any experience we could have otherwise gone through. This will hopefully also help other families and boys who have to go through this. Our boys will help to solve some of the puzzles to NEMO. So as we go into clinic again on Monday, continue to pray for strong donor cells and healing. God Bless you all. Tracy