Well the last 48 hours have proved interesting, frustrating and stressful. Without going into deep detail the home health nurse arrived at 10:30 pm tried to get the pump to work until 11:30 pm and we never got Simon hooked up to tpn. He went all night and until tonight was not on the iv. Long story short, we supplemented to the best of our ability, screamed at people, cried to people who cared to listen (thanks Denise, Patti and Terri) and finally exhausted just waited, and waited for it all to get straightened out. Noone paying the amounts of money we are paying for these services should be subject to this type of incompentency. Okay so despite a crazy evening and early part of the day we managed to enjoy time with our kids, ice cream, parks and Dave and I even managed to get in a candle lit shared bowl of pasta with wine on our little oasis of paradise (our deck) after all kids were in bed. We pray that the tpn helps Simon to feel better tomorrow as today he was crabby (something he never is) and droopy and just not himself. I am turning in to try and get at least 5 hours of straight sleep as I have had none in two nights. So please continue to pray for healing and for our vntrs (donor cells) to be strong and untouched unless they go up in donor cell percentage. God Bless and enjoy the Blessed Sunday. Love Tracy and David