Saying Goodbye and Holding Onto the Everyday

spent the evening saying goodbye to a friend who I have known for many years. It was a very hard night to see someone always so full of life, who always laughed and smiled and always showed you that she was happy to be living in the day to have been defeated by a cruel disease that took her life slowly at first and with a vengence at the end. May my very dear friend rest in peace and may her children and husband have the strength to continue to be a family and find hope and love in those around them. My heart goes out to them and I will reach out in the days to come.

I was sent a CD by another friend of mine by Mark Schultz. Specifically with a son in mind on the CD entitled "Hes my Son" about the authors friends 14 year old son who battled lukemia and what the family went through for a year. I had to read the words, digest them even before I could listen to it but today and tonight I listened good and hard and it broke my heart to hear the pain that so many parents feels as they watch their child battle a chronic illness. "I"m down on my knees again tonight. I'm hoping this prayer will turn out right. see there is a boy that needs your help, I've done all that I can do myself.......as it goes on "can you hear me? am I getting through tonight? can you see him? can you make him feel all right?If you can hear me let me take his place somehow, see hes not just anyone....hes my son." This has hit me and hard. I was able to spend the evening with very good friends who have the hearts of gold and the love of a million people to give to another and in all of that my heart was weighed with the fact that after all my effort today Simon still got upset at bedtime and vomitted up all his days food. Its so upsetting. So frustrating. Please pray for him to completely heal and be able to be the boy we dream of him to be and be able to play and love and laugh like we all do. To lift the burden of worry up once and for all and for life to go on in a happy sense. Our vntrs were back 95% today (that makes up happy), cyclosporine level higher than ever but we will leave the dose and igg down to 432. We are not completely comfortable but will definatley readdress on the 11th when we go back. Please pray for complete healing and no infections or worries for Simon. we appreciate and thank everyone for all of the prayers and God for watching over Simon and us and please pray we continue to need them. God Bless Tracy and David