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After paging the nurse on call at 1:30 am with worry Simon was having side affects due to the TPN and screaming and throwing himself around uncontrollably, we finally got him calmed down at 3 am and got 3 hours of sleep. He woke up very tired and crabby but rebounded once we got on the road to the hospital. We were able to take in stool samples and give another good one while we were there. The one we brought in showed some blood in the stool but they said its not surprising given he has had it running through him for over a week now. We think he is on the road to trying to heal and we will continue TPN for one more week along with giving him food as tolerated and wanted (which seems to be more than before). His skin is looking fine still but his teeth are really bothering him so I'm putting a call into the dentist to see how we can break them through. We had vntrs drawn today so pray they are at least 95% throughout all of this. His other levels were ok, some we need to watch but nothing serious. One interesting thing since all this started since we stopped the elecare (his formula) he has less gagging. Not sure if thats due to him not being so full or what but I have wanted to get him on milk and off the bottle for a long time so this might be a great time to try once we are allowed to give him that again. Again, please pray for good donor numbers and for gut healing for Simon and to keep him free of infection. Also maybe say a prayer that Dave and I might be able to get some sleep. Ha ha. Have a great Monday. Tracy

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1 Comments

Laura Warwick said:

Hi guys! I am so sorry you are going through this living hell. I pray for you all nightly... and daily. Summer is on it's way. Let's hope for relief for you all. If you need help, just call. Love, the Warwicks

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This page contains a single entry by Tracy published on June 11, 2007 8:00 PM.

TPN Finally going was the previous entry in this blog.

TPN goes well and Appetite Increases is the next entry in this blog.

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