Well we've had a couple of pretty decent days. Simon has been a wild child and we have been getting out a little and seeing some friends and family. Its always with alot of caution and fear that we do that but if I can tell you how much Simon opens up and thrives in these situations and turns on the charm and character you would have to ask yourself how can you not allow him to be with his family. He loves to interact with everyone and will recite their names to you for days after seeing them. He is so cute with so much these days along with of course being a pistol of fire and stubborn attitude. We have been dealing with for a very long time daily vomitting. We have been discussing with our GI doctors the fact that we do not think Simon empties his stomach or digests things in a timely manner and we were set to put him on a new medicine that would help him to get his stomach to kick into mobilizing some of that food and turning it into fat or weight or something but the medicine will not mix well with one he is already on. I was almost excited to start it in the hope that it would help the vomitting to stop and for him to be able to keep his food down so we are trying to work it out and will discuss it more at clinic on Monday. Its heartbreaking to watch him as he really is enjoying his food these days, asking for things, opening my pantry and pointing to foods "mama cheetos" as he looks back with his big eyes of hope that he will get some and then only hours later to watch it all, from the morning meal, come back up with great force in the same form it went down. So pray that along with great high donor numbers, high igg numbers that we get something that starts to help this issue. We also are being revisited with red bumpy skin that so far has not gotton the dark centers and has not blistered but it doesn't look nice and it is itching Simon, so pray hard that the skin does not get any worse, only better.
Tomorrow is a day I plan to soak up all my familys love and devotion and relax and watch all that goes on while Dave takes on my job. The girls are excited as they have told me they will be serving me breakfast in bed and then the have "something" for me. They cannot keep a secret. Afterwards we will be heading to my mother in laws for lunch with the family. Again, as good as it feels to be with them all, my fear is always near and I always question if I am doing the right thing by allowing Simon to be around anyone. In two weeks we will be 6 months out of transplant, we pray it only continues to get better and Simon triumphs in the same form that his spirit rises to the occasion every single day that he has dealt with this. So, enjoy your day moms. Happy MOthers Day and God Bless. Say additional prayers for Jacob that he may be relieved of his GI issues and start towards recovery in that area. God Bless you JT. Love Tracy and David

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