VNTRS stable

Well vntrs remain pretty stable. The machine was not working properly so we had to wait an extra day but I got word they are 95% overall, around the same. We are still wondering what to do about his GI issues as he does continue to vomit once a day. I met with my nutritionist and speech therapist today and they basically told me to try and give him at least a fruit or veggie with every snak/meal beacause since I'm such a calorie freak I seem to lean towards the all fat meals, which Simon loves by the way, and it takes longer to process. So I think I will try that before starting him on erothymicin (SP?) as I hate to add another antibiotic due to diarrhea, which we have enough of, and side affects to the cyclosporine. I am so thankful to have Kim our nurse practitioner who guides me very well along the way and helps me with my doubts and fears, thank Kim.

Anyway I was out tonight with my girlfriends to hear some Jazz music, which was very good but very loud so we opted to visit the quiet venue next door and I had a nice time laughing about silliness but also speaking of things that are dear to my heart and others. It is always a welcome relief to know friends are there, care and want you to feel normal yet not alone. I came home only to find that Simon had vomitted enough that the smell still filled the room and I immediately knew when I walked in. Its a sombering feeling knowing if you stayed home it could have been prevented because Simon, when upset, cries and pukes. So tomorrow is another day and I will do my best to get food in him and to hope it will stay, process and feed his energy and his donor cells to be strong. IVIG is a concern as we are down to 500, I will be pressing the issues next week as below that scares the "***" (sorry) out of me. God Bless you all and do me a favor, no matter how much you think a person in need may require space, make the effort to reach out if by card, e mail, starbucks gift card, call when you knwo they are not home, but call and tell them you don't know what to say, but you care so much. It means the world to the receiving person. God Bless you all. I am asking for special prayers for Tom and Jacob. They need all of you to pray for healing. Thank you. Love Tracy and David.