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God Hears Us

Today my brother in law Tom and his daughter saw Simon for the first time in maybe 8 months. Since we have been so cautious about Simon and who he sees and where and Tom has had his health battles for the last 6 months it has been way too long that we all have been apart so it was a nice surprise to walk into my mother in laws house today to see the two of them sitting there with my kids. A long overdue reunion. Tom said I can't believe how good he looks, but I always have thought he looked good when I've seen him. Thats the thing everyone always says about Simon, they cannot believe how good he looks. In his short time here he has been through more than any of us might encounter in a lifetime and his spirit and drive just keep him keeping on as he wakes up and puts a smile on his face and just lives life. I think I still need to learn how to do that from him. Today we were blessed to receive VNTRs, which are continuing to go up and were at 96% this week. We are so happy and so blessed and thank you all for praying and helping our miracle to work. His igg level is holding somewhat at 532 this week and we are holding off ivig another week. I keep praying it will start producing itself. I am in no hurry to taper cyclosporine as it is helping the donor cells to grow and if it takes until Simons body outgrows the dose he is getting and his cells finally give in to Marrians and lets her prevail then that is what we will do. So there you have it. We are basking in this news of today and hoping that by tomorrow Simons cold starts to leave along with the horrid cough he wakes up with everyday. Pray for that and all of you moms enjoy your mothers day weekend. Remember you are the GLUE of the family and know you work so hard to make everyones life work and feel loved so allow yourself the love and caring to be for you. God Bless. Love Tracy and David

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