Cure 4 Simon

wanted to post this for two reasons, one to say thanks for the many calls and e mails we have received. I'm sorry that I just am not feeling up to talking about all of this right now but it feels good to know people care so thank you. Its been a busy weekend and Simon has had alot of fun. He is full of life and to look at him you would never guess what is going on inside. It breaks my heart and I honestly have not been able to go anywhere without breaking down. I stood in the Jewel parking lot in tears on the phone to Dave trying to pull myself together and act like everything was normal just running to the store like everybody else. In my heart I feel okay but in my chest I feel heavy and scared. I don't know what to believe. We have had a lot of smiles this weekend with the kids and its a shame to have them overshadowed again with all this doubt, fear and anxiety. Its with us every minute of every day now again. I go to clinic tomorrow for more labs and to make sure the cyclosporine is not too much as it can be toxic. We ask again for prayers, I don't know what else to do. I'll keep you posted as we hope to get vntrs back on tuesday. I have never wanted anything more in my life than to have his donor numbers up and steady. Thanks and God Bless. Tracy