Well the weather was beautiful today. We took advantage of it by going to a local nursery to look at alot of beautiful flowers. The girls and Simon just loved walking from flower to flower telling me "mom look at this one". It was so great to see Simon just running around like he was a normal little kid. We are so nervous to have him anywhere and outside is no exception. We are cautious but also feel he cannot just sit in the house and do nothing. He loves being outside, he is a boy who is discovering the world and he wants to explore it. We stopped for lunch and parked by a park, grabbed our blanket and sat outside to eat. Simon just ran all over the open field as the girls chased him. So noone ate much. Simons appetitie has decreased alot since we upped the immune suppressant and he has been vomitting more than he had been. I just wish we could get him off of all of it but we know it is a long way off. He is stooling much more too. I just don't know how to get him to grow or thrive. He seems to hold his own which I know the night feeds help with that. We have tried to get him off the bottle but really its the only way he will take in enough fluids and calories during the day so that is on hold too. All of this with the fact that he is 20 months old and has a mind of his own. After dinner we went over to the school so the girls could practice riding their bikes which did not get much use last summer and Simon tooled around in a pink and blue car (shhhh Dave is dying to spray paint it blue). My smile didn't stop the whole time we were there as we ran around pushing him and watching the girls all with big smiles on their faces having the best time just being kids. God willing, we will be enjoying that alot more. We go in for pentamadine IV infusion on Monday. I have to say I am very nervous as Simons skin has finally calmed down and I actually am getting rid of the thick scaring left from the last serious flair up of infusions or whatever is actually causing his skin to react the way it has been. So please, pray for Simon to make it through with no affects from the infusion and for his vntrs and igg to be way up there along with all counts that need to be holding strong and gaining strength with this time of healing. I think of what we still have ahead of us and I pray it just gets better. God Bless, enjoy your Sunday. Love Tracy and David