Our Dear Friend Received his Wings

Today our hearts are saddened by the passing of our dear friend Jack Hagelin. He has been asked by God to join him and was given his wings last night. Jack and his family were our first NEMO contacts and they have been there for us to support us and help us understand the NEMO disease. The Hagelin family have become part of our family and I spoke to Charolette, Jacks mom, all the time about our boys. Jacks battle with NEMO is over and he passed not having the NEMO disease at all. His NEMO was fixed and he was free of the bad NEMO but he contracted para influenza which is a viral pneunomia and his little body just couldn't take any more. We are asking that you please keep his family in your prayers. Charolette and Roy have been such an inspiration to us all of what love and faith and strength can prove to be and they have helped us to become that too in our battle to save Simon. This hits home for us and we are so sad to hear of this news. Please go on to cure4simon or cure4jack to get details on arrangements and how you can help the Hagelin Family. Jack you are not gone from our hearts and we will continue to do Gods work that you started down here as you watch over us. God Bless you Jack. You have always been a strong hero to us.