Counts Are Good

After a long day at Childrens we are home and sleeping soundly, well I'm not of course but the kids all are. Simons counts are awesome today. We are so thankful and feel so lifted right now. I hope the feeling continues into the next century and beyond. He received IVIG and pentamadine today and was really yucking it up with the ladies in the ASCU. He was calling all their names and saying hello, goodbye and calling "jenny, jenny" waiting for her to keep walking in, calling trina and kim, it was too cute. Hes such a ham. They loved him up. After our long stay there we headed to pediatric surgery to get simons venus port checked as hes been annoyed by it alot and I was worried. He also had his g-tube pulled out and a new one placed back in the ole tum tum. He was great and didn't even cry when I cringed as Terri pulled it out. ERRRR I never was one for hospitals and the stuff that goes along with it.

Isabel had a 2 day 104 fever and we tried very hard to keep her and simon apart. Washing down everything a couple times a day with clorox wipes and now she is better. I pray Simon skips the virus. Marr has a cold now so tis the season to be extra careful. Please pray Simon skirts past it all.

Thursday Dave is taking the day off and we got the "ok" to go to the zoo with my sister and her family. It will be the first time we have all been together since summer so we are very excited and hope things go as planned.

We go back to stem cell on the 10th to meet the new immunologist and try to get him on board for future care. We are hoping he will be talking to Dr. Uzel in Washington and will become well informed of NEMO and what to do so we can have a Chicago doctor and still confirm things through her. So that is it. Please pray for continued health, healing, noninfections in Simon and 99%+ vntrs for a lifetime of health for simmy. Thanks for keeping up with us. We truly appreciate it. Love Tracy and David.
Oh and Devon and Bridgett we miss you guys, stop to see us on the 10th in ASCU if your in (bridgett come in just to see us 9am). You'll be amazed how simmy looks.

Raise money for the National Federation of Ectodermal Dysplasia simply by clicking your mouse! GoodSearch.com (powered by yahoo.com) is donating money to charities for use of their search engine. To use it, install the GoodSearch toolbar to the top of your browser screen and then type in the charity (National Federation of Ectodermal Dysplasia) and then search as you would on Google.com or Yahoo.com. The NFED gets a monetary donation for every search! The more folks that know about this, the greater the donation to NFED, and hence the more money there is to fund research on Simon's condition and others like his. Thank you