Close Call and Prayers are Needed

Well we are back home after almost ending up admitted today. After Simon had his ivig and pentamadine infusions on tuesday he has been slowly breaking out in a rash. By last night it was pretty bad. He was up every 40 minutes crying and at 2 am throwing up everything and all over me. After I showered at 3 am I pulled him in bed with us and 20 minutes later he was asking to go back in his crib. He was just that uncomfortable. WE gave him tylenol and he slept a couple of hours. BY morning he was so red and swollen and inflamed that you couldn't touch him. I picked him up and he shook from the pain and cried. I gave him more tylenol and took the girls to school returned and decided I needed to take him in. We saw stem cell and dermatology and they concluded it was still erythema multiforme which they think is drug induced by maybe pentamadine since this seems to come up once a month right after the infusions. We are home on motrin, hydroxine and tylenol with codine if necessary for the next 3 days. Please pray that this heals quickly and doesn't form into any other infections.

We have Jack Hagelin and his family in our thoughts constantly especially these next two days. Jack was made an honory firefighter and so he is having a full firemans funeral with 3 fire trucks and all. God Bless you Jack. You are in our hearts and we will miss you. Please pray for strength for his mom, dad and sister. Below is some information if you would like to help the Hagelin family. Thanks. Tracy and David

Hagelin, Jack R.S. passed away on March 27, 2007 of Fairfield, NJ. Beloved Son of Roy and Charlotte Malfitano-Hagelin, Brother of Christina. Grandson of Ruth (Unger) and the late Salvatore Malfitano, Reed Hagelin and Marilyn P. Hagelin. Visitation at the Quinn-Hopping Funeral Home, 145 East Mount Pleasant Ave., Livingston, NJ on Friday from 3:00pm to 8:00pm. The funeral Service will be conducted from the Funeral Home on Saturday at 10:15am with a Funeral Service at St. Thomas More Church Fairfield, NJ at 11:00am. Interment Reformed Church Cemetery, Fairfield, NJ. In lieu of Flowers, those so desiring may make contributions to the “Found NEMO-Finding Cure Foundation” in Jack’s name to PO Box 366, Pine Brook, NJ 07058. www.cure4jack.org