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Busy Week - Its all Good

What a gorgeous day outside. We plan to take advantage of it after Simon naps. The girls and I will get out now I think. Anyway its been a busy week of appts for Simon. All went well. The dentist said he wouldn't recommend doing anything at this point until we are at least 1 year minimum post transplant. Its too risky for infection. I agreed. He felt two top moulders but nothing on the bottom. With the ED kids don't get their teeth errupting very quickly and sometimes they just stay under the gums forever. Most likely he will get a few more. Right now we are still at 3 front ones with a 4th coming in. He will most likely get dentures around age 3 so about a year to go. We saw dermatology today. Dr. Mancini was amazed how good he looked. Good hair growth (kids with ED don't have normal hair but Simmys looks pretty good), his skin is calmed down since he last saw him and he is happy all the time smiling. He does have a suspicious looking mole that we will be removing maybe a year from now. Dr. Mancini says he sees that alot in post transplant patients. We saw our nutritionist too. Simon is up 10 oz to 23 pounds. That makes me smile. He had his little button down gap shirt and jeans on today and he looked like a little man. Too cute. I need a digital camera so I can share with all of you. So overall, things are going well. Prayers always wanted daily if you can squeeze us into your prayer list for continued healing, growth, continued 99% donor cells and no infections. He sees stem cell Tuesday for all blood draws and IVIG. So you will hear from us next week again. Please pray for Jack and Jacob who are having a bit of a rough time now. They need your strength. God Bless and enjoy Spring. Love Tracy and David

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This page contains a single entry from the blog posted on March 22, 2007 7:45 PM.

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