They Spread the LOVE for Simon

OUR BENEFIT FRIDAY NIGHT AT TEASERS WAS A GREAT SUCCESS. We want to thank everyone who came out and supported our family and our little Simon. We are so thankful for all of you and for the love we felt. So much effort was put into this benefit and it really showed with all the little details. The raffles, the split the pots and the food. Our special thanks go out to Sue, Camille, Tina, Pam, Marge, Cathy, Jean, Mary, Donna, Teasers for donating a portion of their sales to us, Camille’s husband and their family for donating the sports memorabilia and helping with things at the benefit, Dinos Pizza for the yummy Pizzas, Mr. & Mrs. Greco and Sandra for taking care of the door and (benefiting from that with the ladies, ha ha - you know who you are Mr. G), Maryann and Gabby for the accounting work, Meghan and her friends from DePaul who sold raffle tickets for their community service hours and the many others who may have been behind the scenes doing things and helping out. There were a lot of people there who are long time friends, co-workers, new friends, strangers, and even Jacob Browns aunt Bethany came out in support of our NEMO boys with a group of her friends. The crowd was amazing and we had a great time. We hope everyone who came had a wonderful time. It seemed to be a perfect evening. Thank you for making the trip to Teasers and for taking part in this event for our son. Simon will always know what love and prayers went into his life early on. Everything that people have done and are doing will be journaled for him to always have and be able to read. Once he gets past some of this immune system stuff and we can move on to the other issues he will face I will continue to document things for him. He can look back and always feel the love. Our special thanks go out to Sandy and Kelly for holding down the fort with Simon, Isabel and Marriana so Dave and I both could attend the benefit and really enjoy it.

A Son needs a mom to teach him that sometimes the battle is within;
To make sure that faith is the light that guides him.
To tell him that anything is possible if done for the right reasons.
To tell him that remaining faithful is his promise and obligation.

We need our son to teach us that life is about more than what you can obtain.
That being there for those you love is most important.
To assure us that even in the worst of times, try to find the hope - the smile and laughter that has brought us through.

We are so thankful for Simon and all that he continues to teach us. Our world and I believe the world of many others has been affected by Simon. Dave and I continue to be overwhelmed by everyone’s love and generosity. Thank you so very much.

We went to clinic today. Labs came back pretty good. His White count, Hemoglobin, Platelets are all growing and holding strong. We are very happy about this. I am waiting for his IGG level and will see if any changes need to be made. Simon is eating a little more and is a crazy machine but his skin has flared up on his arms and legs. It just doesn’t seem to want to go away. We used to have periods of clear skin, we have not had that in a while now and I can’t help but wonder why, especially with him being 99% donor cells. We continue to ask for prayers that his VNTRS stay strong and stable at 99% or better (these will not get drawn again until day 100 which falls on March 7th) and that he continues to eat his little bits and that his appetite and ability increase for food consumption. We also ask for prayers that his skin starts to clear up and he can be without pink bumps very soon in the future. God Bless you all. “To believe in a miracle is only a way of saying that God is free - Free to Do a new Thing. May God be able to move on and bring a miracle into someone else’s family. Thank God for our Miracle -We Believe!
Love Tracy and David