Skin Rash Escalates with a Vengence

I hope everyone is warm in their houses tonight. Whats with that ground hog anyway. We took advantage of the wintery weather and stayed in and had a pj day. It felt nice to hang out with all of us and not have either Dave or myself running errands alone. We had things we needed to do but....our laziness got the best of us today. Dave starts at 4 am tomorrow so he is fast asleep. We have had some issues with Simons skin come up in the last few days and the last 24 hours it has really worsened. I sent digital photos to the doctors tonight (thank you Tammy and Rick for borrowing us the digital), hoping when they view them in the morning they can tell me what is going on. Basically the rash Simon has had for months now that we can't get to go away and noone knows what it is or why, has gotton 5 times worse in the last 2 days. Simon has welt like areas that are purplish in the center that are now hurting him. If you rub lotion on them he cries. This upsets me alot b/c this has landed us back in the hospital more than once. Simon still is running around and being his crazy self. Hes such a goof and you have to just grab him and say "give me a hug" and he squeezes you saying "tight" and then says "down" so he can continue on, you gotta love it. Anyway, please pray tonight, tomorrow, always that this is a very temporary thing, that it will go away quickly, for good this time, and maybe we can find some answers as to "what? Why?" soon. Please keep Simons immune system in your prayers that he continue to be at 99% marrs cells and he remain strong and in the healing process, boy its going to be a long one. He is still eating some, but throwing up at least once a day complete with major gagging, I keep thinking its going to get better, it has to. Well on the good news side, Tommy went home from the hospital today so lets pray he stays there this time. Lots of Love Tracy and David