Labs Hold Steady

Well even though the Bears let us down Simons labs held steady. Today was relatively quick and painless. We went for the swallow study which Simon decided not to cooperate with and drank very little and ate, nothing. So after several jokes I said well folks sorry to have wasted your time. We went from there to stem cell for labs, vntrs and pentamadine (to prevent pneunomina). It was quick and we were out the door after a visit with Dr. Jacobsohn and the girls who Simon adores. His labs are holding steady. Really no improvement but they are stable so that is okay. I expected them to at least be up a little since we have not had labs in almost 3 weeks, but they tell me they are ok. So we will find out where the vntrs stand on Wednesday. Simons weight remains around the same. Sometimes a little less. He has taken in nothing today. If he would just eat like he does on the days he does eat we could get past 20 pounds. So I hope that surging forward will get us past some of this. We are at day +70 today. I'm hoping some of this will start to improve. We have bumped up his calories in the formula and are adding supplement fat to it as well to try and get him heavier, so far that is not working. I will let everyone know when I get the vntrs back so pray for 99-100% marriana (donor) cells and for Simon to start wanting food.

We hope to see everyone at the benefit on the 16th. If you need info. for that I will repost it next week or look at the back updates it should be on there too. Thanks for the prayers, please continue to keep Simon in them everyday so we can get past all of this. God Bless. Go Bears, next year. Keep the Faith. Tracy and David