Double Blessing Day

Well today turns out to be a double bonus day. I took Simon to the neuro surgeon and he told me Simons skull fracture feels as it is healing okay. We will still need to keep an eye on it the next few months (+) and make sure he does not get a soft spot there which would indicate that the membrane covering the brain, which lyes between the skull and the brain, has not gotten between the fusing skull bone. He thinks this is very unlikely to happen so that is good. We are still waiting to hear from the hospital regarding the whole accident, not even one rep from the hospital has called us to this day. Its appalling. Our second set of excellent news is that Simons engraftment is holding steady at 99%. This has me elated. I am so thankful for all the prayers that have helped us to achieve this and cannot thank everyone enough for sticking by us through this. Please keep praying.

Simons rash has reappeared. It is showing up on his back and now on his face, which are places he has never had it before so I have a e mail into derm. I stopped by GI today to have Simon weighed and will wait to hear from them as to how to proceed to bulk this boy up. Today he has had 8 oz of formula and a few bites of cheese. Its by far the hardest thing for me right now.

So that is it. We are joyous today and thankful. Yesterday we were able to enjoy the snow and actually ventured out to the snow hill at the park and watched the girls go down numerous times. Since it was cold we did not stay long but it was a breath of fresh air to be outside and not stuck in the house. Simon loved his new sled I got him a few weeks ago and Dave even took him down the big hill once. It was not a complete success as Simon felt the snow in his face and lost his mitten which caused him to have a serious crying fit which made me think he broke his hand. All ended well with hot chocolate back at home. Enjoy the day/week. Lots of Love Tracy and David