The Days Keep Moving Along

I've been getting razzed a little for not posting anything and everyone assumes no news is good news, which is pretty true. We did have to make an unexpected trip to clinic the other day because Simons g-tube was looking infected and we wanted to catch it before it ended us back in the hospital. So Simon adds another med to his already long list of daily swallows. He is on a 14 day antibiotic to keep the g-tube from getting worse and so far all looks good. His skin is clearing but two weird things have popped up this weekend and as always we are concerned. I'm telling ya if we could get past the skin we might be ok. He is getting little red dots now on his arms and his hands are forming thick almost scarring on or around his knuckles. HOpefully its just the skin replacing itself. We have been hanging at home alot. Its getting hard to be in the house but I take it over the alternative any day. Dave is spending alot of time at Northwestern with his brother who is in the ICU there and sedated. They are hoping to bring him out of it tomorrow so pray hard for him tonight.

Simon continues to be a joy and he and the girls are really interacting. They were doing the dance moves together today and it was such a joy to see the smiles on their faces. Simon is walking all over the place and really pooping himself out. He even ate today so that always makes a mom smile. Keep praying for continued improvement. Tuesday is clinic and vntrs will be drawn. Pray Marrs cell continue to dominate at 99% or better.

God Bless you all and thanks for checking in on us and helping us through all of this. We are so thankful. Love Tracy and David