Back to Reality - Therapy Begins Again

Today started up the series of therapy sessions that Simon had before he went in for transplant with our nutritionist coming out to the house. After a long visit which I was grateful for we have a plan. Its a pretty drastic plan to try and get Simon more off the g-tube feeds an onto drinking and eating on his own. We have been experiencing alot of vomitting again lately and absolutely no appetite for food. Its always such a struggle. So we will give this new plan a few days and I will see her and speech therapy next week. I also need to start up physical therapy again too. With David returnign to work Monday it will be an adjustment period for me and I will have to figure out how to get the girls to preschool 3 times a week without actually going into the school with Simon. I am praying this works with the feeds and he will start to be more interested in food. It honestly is my daily chore to get him to eat even a few bites of food. He is maintaining weight but we need him to gain and grow. So with no visit to stem cell until the 5th of February we pray all stays stable and Simon rocks with his counts and vntrs stay the same and his nutrition improves. Please pray for that for us. God Bless you all. Keep up with us we have a long road to haul. Thanks. Tracy and David