Simon Continues to Improve

A quick trip to clinic yesterday for labs and a skin check and we were out of there. Yeah!!!! Simon is doing okay. His skin is trying to clear up and changing everyday. They think it is just the healing process. Hopefully it will continue to resolve. The dermatologist tells us it could take months to totally go away. All studies for the chicken pox and herpes viruses have come back negative so again as Dr. Tse said "Simon is a special child". We already knew that so.....we just try to keep him healthy. He is at day +33 so his bone marrow is still growing. As I type the girls and him are skreaching downstairs. Eating continues to be a challenge. He will take a few bites here and there but we mostly are relying on the tube feedings still. His weight is a little low and I so want to bulk him up. Last night I freaked out b/c I used a different syringe for one of his very important meds and ended up giving him double what he should get and this is a med they check for high levels due to toxicity of the body. I freaked and ended up paging the dr. at 10pm. Luckily he was at the low end of the dosage and Dr. Jacobsohn told me it should be fine. But being a mom I have beat myself up for the stupid mistake ever since. He is playing and being his happy self so hopefully that one time mistake was not too bad. I made Dave draw up meds this morning.

We enjoyed a delayed Christmas celebration and all the kids had a great time and we have been playing games and things since. Hullabaloo for kids is alot of fun if anyone is looking for an active game.

We hope you all have a safe New Year. Be Careful out there. And Peace and Great health to everyone in the 2007. God Bless and keep praying that Simon holds onto Marrianas cells solely and continues to improve. Also a big WELCOME HOME to Jacob in Cincinnati. He is post transplant too. Keep on going strong Jacob. Love Tracy and David