Several updates combined into One

Sorry to update again but I had to share a very scary accident that happened today to Simon and I want you all to pray he is okay. Simon was napping and Dave and the girls had just arrived at the hospital to relieve me and so we were all in the antie room exchanging gowns and things and I was going to take the girls to the playroom so Dave and I could have a moment together when we heard a loud crash, a thump and then screaming. We looked in Simons room and the crib rail had crashed down and Simon fell to the floor on his head. It is like a 4 foot fall onto a concrete floor. He was screaming, I was hysterical and I screamed to the nurses and they and doctors came running in. WE are not sure how it happened as the crib rail was all the way up but one thing is for sure, if nothing else it should have stopped at the half way mark and Simon should not have fallen. He has a huge lump on his head and is being watched closely. He is acting ok and ate dinner so I am home now worrying and Dave is keeping a close watch on him. Please pray his head was as hard as Daves can be and that he is okay. I'm still shaking. God Bless. Tracy

75 November 30, 2006 at 02:51 PM EST
Just wanted to send out a quick update before I go home for two days to spend time with the girls and my computer to do some work. Its pretty boring here. Boring is good. Simon is doing well. Tolerating things, seems almost too good, so we'll see what these next few days bring when more affects are to kick in. He is not eating and is very tired but still manages to play, flirt and laugh alot. All the nurses love him. Hes truly an amazing kid. He is very chatty with everyone.

Marriana is doing really well. Almost like she has put it all behind her which makes me happy. I am anxious to spend time with her and Isa right now as I have not seen them since the harvest. They will go back to school tomorrow and get back into a more normal routine which will be good.

Remember to use our amazon.com search for all your shopping on Cure4Simon.org and a % will be donated to Simon from your purchase. Please have a safe evening with the snow fall and get out there and make snow angels to watch over Simon and all of us. God Bless. Love Tracy and David.

74 November 28, 2006 at 03:29 PM EST
Whew, its been a long two days. Marriana was harvested yesterday, incidentally my birthday (which Dave felt the need to let the whole 4th floor aware of) and she gave a really good collection of cells. MOre than Simon needed so they already gave him his dose and are freezing the rest. Mar and Isa are laying if bed watching TV here and we have about 2 hours left for day twos harvest. Marriana has been a trooper. She was a little scared and stiff yesterday but today she is not as nervous and just anxious for it to be over FOREVER. As are we. Simon received his cells and so far is doing well. Yesterday was a busy day and we ended it by sending Isabel home with grandparents and they allowed us to all be in Marrianas room for a short time before Simon was sterilized and sent into isolation. Simon was all over marrianas bed and trying his best to climb up the incline of her bed only to fall on top of her, laugh and lay for a minute to hug her. It was so cute. No Hill is too High for Climber. Our friend Steve brought us dinner (way too much but it was delicious) and the Marriana and I had a pajama party with books, cookies and a movie. I slept in bed with her and we started the process all over. Dave is a little stir crazy so he will be happy to get home today. It is hard to handle Simon as he does not sit still and there is little places for him to go. His counts are down, not completely gone, so that worries us but we are very very hopeful and we have faith that this is it, our rebirth was today. So keep the faith, keep the prayers and I'll keep you all posted. God Bless. I realized having two kids in the hospital is very hard especially when there is next to no sleep involved. I hope to have them both home very very soon. Until the next posting.....pray for all the sick kids. Its heartbreaking to see it everyday. I was lifted today when I saw a little friend from simons first transplant and she is doing good and home and almost done getting her meds, one month to go so you gotta have faith. Love Tracy and David

73 November 26, 2006 at 09:43 PM EST
The God who spoke still speaks..The God who came still comes. He comes into your world. He comes to do what you can't. When I read this today I thought, hmmm that is so true and God is here with us and will help us get through this and help us heal Simon and give him this immune system he needs to be a normal healthy boy. God is with us, I feel his presence and I feel the love that surrounds us. Thanks to those who have touched us and reached out especially in these last couple of days. It has meant so much to feel your presence there with us. So Thank you from our hearts.

Tomorrow starts a couple of tough days with Marriana having her long days of harvesting and Simon gets his last does of chemo. Hes done okay with things, vomitting a bit, tired but otherwise, trying to be a 15 month old boy of craziness and smiles. Dave and I will be at the hospital round the clock and do our best to be at two bedsides at once. Isabel gets to go out to dinner with Grandma and Grandpa and Marr and I have a large selection of books picked out for the evening rest period and we might even indulge in a movie. If I didn't know better I would feel like we were getting a girls pajama party night. So with all of this going on this week we ask that you find your God within your heart and life and ask him to come to our aid and help us to be strong, help us to prevail and make the right decisions and do all that can be done to get us 100% donor cells with as few complications as possible. All we ask is to be home again, with a healthy family, doing the daily grind that wears us down at times but now seems so appealing. Please pray and help us to get back to that. I watch families all around us now, friends, neighbors, strangers and think how much I envy them. Envy their time together without worry of illness and I long for that more than anything to be a part of our lives once more. Three weeks is our goal to be home. Lets pray we make it with unbelievable news of 100% working donor cells in Simon that have the stamina to outlast any energizer you could find. We fill our hearts with hope, we fill our life with love for there is no love like that of child. Marriana is giving from her heart even though her fear is greater than her knowledge of what is really happening. The girls love simmy. He lights up when they come to visit and it will be hard for them not to see each other but with the outcome ahead to be positive and strong we will wait out those weeks. Think of us in prayer and enjoy your week. We'll check in in a few days when things will hopefully just be waiting for cell counts to come back and nothing more exciting. God Bless. Love Tracy and David