G-Tube Continues to create Issues
Its very easy to lose track of the days here but with all the people in and out you know its Monday. The weekends are so quiet and lonely here. Simon has had a couple of rough nights resulting in him and I not getting much sleep. He pretty much makes sure he gets up to one big vomitting episode every night and he is very restless due to the infection at his G-tube site returning. The bad thing (well good and bad right now) is that he has absolutely no white blood cells to fight the infection so it is festering and while the antibiotic is trying to fight it off its not getting all of it. I'm told today it could get worse before it gets better. Its painful to him and that makes me very sad. He is comforted by being held which he gets all the time and we will pay dearly for it when we bring him home but right now, he needs the lovin care so he gets it 24/7. They are starting an additional antibiotic for gut infections just in case its more than what he had in the g-tube last time and so that they can cover all the basis and hope it doesn't get worse. So that will give him no time off the iv poles. At least we were getting little breaks where he could toddle around the room without the pole but that is on hold until he feels better. I'm beat and looking forward to going home tomorrow to get some rest after I get my work done. I miss Dave alot as we don't see each other but 10 minutes every few days and I am looking forward to spending time with the girls and going to do a little stocking stuffer shopping for the kids. Its hard to be away from Simon as you worry alot when you are not on watch at the hospital but I know hes in good hands with his dad so that helps. Please continue to pray that his counts start to come up sometime next week and that they are all Marrianas cells with stamina. God Bless you all. Enjoy all that is around you, its precious as are those who you share your everyday with and your home with. Its hard to be away, especially this time of year. Love Tracy and David
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