Christmas Eve

Merry Christmas! Its amazing to me how you think there is no way you could possibly love someone more than you already do and then they do something to make you realize there is no boundary in the area of love. Today I was watching a movie while Simon napped and having a weepy family future moment when I looked in the antie room and saw the girls and Dave standing there with a completely bald head. I jumped up, opened the door and ran to him like I hadn't seen him in years and wept like a baby. They were tears of joyful sadness but with happiness. I cannot explain it. To see him, and he and Simon look SOOOOOO much alike (see below) (now I see it Devon), it brought so many emotions to me. To think a man has so much love for his child. Dave is an amazing man. He has never ceased to amaze me through all of this and he continues to bring me up and give me energy to soldier onward.

We all hung out at the hospital today and will do so again tomorrow. We have told the girls Santa is coming after Simon comes home as a special trip and I made letters and left them in the girls stocking with candy canes for the morning. We will bring a few gifts we told them Dave and I bought and open them at the hospital and play cards and the new games all day. I plan to cook and bring a ham for us to have there and just enjoy each other and the day.

Simons skin is peeling, alot. But we think its getting better. We are hopeful it will clear and be ok. We had some concerning news today. Simons counts are way down. More than half of what they were 48 hours ago. Its very scary especially to a family who has lost engraftment once. So on this Holy day please pray for engraftment to stay with Simon of Marrians cells, for all the days of his long healthy life. thank you.