Campath is Finished - YEAH!!!!

WEll I had to drop a quick note to let you all know we are home and Simon is resting. He tolerated the 2nd and 3rd day of campath much better due to getting premedicated with hydrocordisone and atarax. This helped with his hives to slow them down. The infusions ended up running for 5 hours, more than double what they started but we are home and he is a crazy, little tired man. He slept well last night with the exception of having some trouble with his G-tube. When I got up to give him midnight meds his crib was soaking wet with night feeds. So again this morning. I am waiting to hear if I have to head back down to childrens for the G-tube to be fixed now. Never a dull moment. We hope to stay home until the 17th when Marriana gets her little port and starts the GCFS and Simon gets admitted. Pray for no fevers or infections in these two weeks for Simon. We are doing our best to keep him healthy while his body gets targeted to lose any immune system he has. God Bless you all. Thanks for the prayers keep them coming. I have to mention this weekend while it wasn't a time of happiness for us it was made alot easier by Simons amazing nurses, Devon and Bridgett. They made a very scary time much more bearable and were on top of every little thing that came up. Thank you both so much. I have to thank Devon for dancing after the campath was finished. She started to and Simon and I both joined in. It was a lovely way to end a grueling weekend. Love Tracy and David