A Night Out A Welcome Change

Dave and I cannot tell you the love and support we feel from everyone. It helps so much to have that here. We were honored to be guests of the pediatric oncology treasure chest fundraiser tonight. It was such a great event and the turnout was tremendous. Our riend Sue and all the committee members did such a great job and it showed tonight. So many people put their hearts into things like this to help families experiencing such a shock to their families and feel the relief when people do what they can to help. Dave and I actually got out for a few hours while Bob and Terri (grandma and grandpa) stayed with the kids and let us have some much needed time together. We were able to talk and dance and have a nice, much needed time together. We are both exhausted and looking to next week when all things will come to be transplant number 2. Dave is woking all weekend and all next week and then he will be off for the duration of the transplant. We decided this time, we needed him to be home since we did not have anyone who could stay week long stays with the girls, and we didn't think it would be good for them to be without us and I physically and emotionally cannot bear 5 straight days alone at the hospital week after week. So this is what it is for our family. We will be in financial distress but our family and emotional well being need to come first. Simon is battling hives and irritation by the meds he is on for his not so quickly healing g-tube infection and we are told it will not hold up our transplant plans so next thursday Marriana goes in for gcfs subcutaneous port placement and to start shots and simon will be admitted on friday the 17th. WE will not be in isolation until the 22nd when simon receives his cells from marr. Marriana, Simon and I will spend the night on the 21st and Mar will be reharvested on the 22nd before giving simon fresh cells. Please pray all goes well. WE know there are so many of you praying for our family and our hearts well with joy to know you are there. Thank you so very much. So many families are dealing with such heartache and I pray that there is a solution to all of this and it comes to help us all so the suffering can end. God Bless you all. Love Tracy and David. Marge, Sue, Jean,Pam and everyone who showed such love to us tonight, such great hugs tonight, thank you. David and I talked so much on the way home how we have been so blessed to have been welcomed into your large families for so many years and feel fortunate to have you with us for the years of joy to come. God Bless.