Port Placement Goes Beautifully
Today the central venus port went in beautifully. Simon handled it really well and after about 20 minutes of being crabby after anestisia he was back to his old self. He even blew a kiss to a nurse he had never met before. He was laughing and just showing us the true, strong Simon. He is wiped out this evening but he came home was all over the house, fighting Marriana for her box of crayons and showing the girls he plans to be King (sorry Dad) of the house. It was so good to hear the laughter fill the house. I remember listening to that on the other end of the phone before we had kids when I would talk to my sister and think, God I can't wait to have those little voices in my house too. Now I just can't stop smiling when they giggle uncontrollably.
We met briefly with Dr. Duerst and we have a schedule. It stinks only because we will be in the hospital for Thanksgiving and possibly Christmas. We did not want to wait until January as too many things could happen so we begin with workup on both Marriana and Simon next thursday. After that we get a week break and then Simon starts Chemo and Marriana starts GCFS on the 17th. So things are going to move along quickly again. Seems we just get thrown into things and they happen so quickly. Better that way for me anyway. I don't like to wait around. So just wanted to let you all know. Hopefully Simon will continue to be a crazy kid and strength will come for us all. I need to say HOORAY to Cynthia. She is on the road to living life again. I'm so happy to be able to say that. And Yeah for Jack who is home and doing much better. I would like to ask you to keep our friend Jacob in your prayers as well as he and Simon will be in transplant at the same time. Strength comes in numbers right??? God Bless. Listen and smile at the laughter. Tracy and David
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