We have a date. We

We have a date. We will be spending a few days at NIH beginning September 25. After negotiating and pleading they are letting us come sooner rather than later. I am thankful for that. I'm still waiting for the details and for their social worker to call to see if we can get some assistance in getting us there. We are anxious and nervous but excited for the opportunity to get another opinion and for doctors who have actually seen and dealt with NEMO to see and run a bunch of tests on Simon. We are disappointed that our Dr. Uzell will not be there as she will be taking a much needed vacation at that time and saying "I Do", so bless her. We'll miss you. The girls are not quite sure what to think but we are trying to be honest with them and sorda make this like a fun trip. Hopefully we will be able to let them have some fun. I'm told the Childrens INN at NIH is nice and fun for kids so that is good. That is were we will be staying while in Washington. We ask that you continue to keep our family and especially Simon and Marriana in your prayers. Please pray that Simon shows us that the fighting he has been doing is finally going to pay off and we won't have to go through transplant again.

On a normal front our little man started to crawl this weekend. Its a funny crawl but a speedy and determined one nonetheless. He also is pulling himself up and standing in his crib. He barely can see over the top but its so cute to see and really allows us to see how much strength he has built. What a fighter. We hope all of you are back into the school routine and blessing each day that comes to you. We are all so lucky to have our kids and to have those around us who make our life fulfilled. Enjoy your week and we will keep you posted. God Bless. Tracy and David