Day +63 Post Transplant brings Disappointment

Well I haven't been updating the blog here but I plan to put in all that has happened very soon. We have been up and down with vntr numbers and were told that our daughters overall amount of cells is down to 20%. This is very bad. They have stopped the immune suppresant medicine and are hoping that it helps her cells to multiply. Frankly we are very scared and heartbroken. This means if this last ditch effort does not work, Simon will have to have another transplant and Marriana will have to be harvested again. We don't want to see any of our children go through this again. Not to mention the strain it is going to put on our whole family. The girls lives have stopped due to Simon not being able to be around people so that means I cannot really take them anywhere, not even target, during the day we are housebound. That is a beautiful place to be compared to what might lye ahead. We were so hopeful since Simon seems to be doing so great. Hes laughing, getting stronger, starting to push off on his feet and trying to turn over. We fear putting him back in the hospital will set all of this back so far that it will be so hard to catch up. He is now 8 months old. We were feeling like the worst of this would be behind us but now we may have to do the worst part of it again. We are just sick about it. We ask for prayers for Simon for this to help Marrianas cells in him to multiply and for Marriana that she does not have to go through this again. This is not a good thing for anyone to go through let alone a little, very happy go lucky, beautiful baby. God Bless to everyone and please keep us in your prayers.