April 17, 2006 at 05:06 PM EDT

April 17, 2006 at 05:06 PM EDT
We have been home almost a week and I have to say things are going relatively well. Simon has gotton a pretty good appetite due to the steroids he is on and we can only hope it continues once they start to taper him off of them. He is not sure about food but mom keeps pushing baby food and ceral in addition to the formula. We are going to clinic again tomorrow for blood draws and vntrs in the hope that stopping the cellcept made a difference in Marrianas counts being up. We pray for that. Simon has had a terrible time sleeping and is keeping us up pretty much for hours every night, still in all I am thankful to be exhausted at home rather than sitting in the same condition at the hospital. We had a blessed and wonderful Easter at home alone as Simon cannot be around people and we felt so fortunate to be here. Its truly a blessing. We continue to pray and ask for your prayers to strengthen our request to God. Thank you all so much for everything and we will keep you updated. We should get the vntrs back on Friday so I will let you all know how it goes. The girls are so happy to have us all home, I hope we all stay here. God Bless and take care, Tracy and David I'll continue to post new photos check them out. :)