April 08, 2006 at 10:30 AM EDT

April 08, 2006 at 10:30 AM EDT
Yesterday was a near perfect day. The girls and I ran all over town trying to get things we need to prepare the house for Simons homecoming and stopped at Portillos for lunch. We goofed around and had so much fun and for the first time in almost 6 months I felt so free, so happy and hopeful. We organized alot of things and are waiting for the cleaning crew to come and scub the house so Simon can come home. It comes with alot of anxiety about caring for him when he gets here but also with alot of excitement that we will all be together again. Simon has been doing great too. Dave had a good day with him with alot of smiles and laughter and play time. They are going to slow his ng feeds down to try and let his stomach get empty so we can see if he will eat by mouth some. It all seems to be tapering too fast. I have prescriptions to get filled (11 in all I think) and things left to get done here.

This morning we were told the VNTRS are down. We are so disappointed. His germ eating cells have dropped to 33% down from 52%. His overall is down to 47% down from 59%. This has put a pin hole in our excitement and fear that if it doesn't work we will be back at this all over again. Its amazing how you can feel so elated one minute and so deflated the next. We ask that you pray and pray hard for Simon that his counts come up and Marrianas cells start to work their magic. This is the negative side to having a mini chemo treatment. Some of Simons cells were always there and now Marrianas have to fight to take over. It makes me so sad to hear this news. I pray that we still get to take him home and that he continues to get better. Dave said this morning his skin is even more dry than ever and no matter how much lotion you put on him, it does nothing. Poor Simon he can't have all things going right always a bump in the road.

Please pray for him and give us strength. Love Tracy and David God Bless Us