TRANSPLANT DAY 2

Well Marriana made it through the harvesting on March 1st. It was a long day and she did awesome. She sat still for over 8 hours attached to the machine and was able to get a bit more cells than simon would actually need. Through the whole thing she did not complain once. She and her sister Isabel sat and played, colored and watched movies and we let her eat whatever she wanted. We now owe her a trip to the toy store for anything she wants. We are so grateful that she is able to donate to simon and hopeful that we see engraftment in the next 2 weeks or so. Simon received Marrianas cells the next day despite having very high sodium levels and an infection they were given to him at 10:30 am on the 2nd and it was pretty uneventful. We kept waiting for something to be but nothing. No music just 30 minute infusion and that was it. We pray now that her cells find a new happy place in simons body and start to help him heal. He has not been able to eat because of his sodium levels which they are trying to slowly bring down. There was question if his kidneys were working properly. So we wait. He now is having trouble with his picc line and they cannot draw labs from them which he needs everyday. They say there is a blood clot at the end of the picc line and that is close to his heart so they are worried and don't want it to break off because if could be very dangerous for his heart. They have started using a blood thinner which he gets in his stomach 2 times a day and we pray that dissolves it. This is a long road and we pray that everyday we hear some good news. Today we were told simon has two different types of bacteria a different one in each picc line so they are thinking it might be the line itself. so each day is something more and we try to hold it all together and be strong. For this we ask for prayers and support for us to get through this all. We have never asked for help for anything but this time we have no choice. We cannot do all of this alone. I'm trying to work from the hospital and dave is trying to work when we have someone to take care of our girls. Its a tough schedule to try and keep. We hope to hear some encouraging news in the meantime and keep praying to see our baby boy smiling again and keeping us forging forward. For strength we pray. tracy and david