March 31, 2006 at 04:41 PM EST

March 31, 2006 at 04:41 PM EST
The VNTRS are finally back and we are happy to report they are going upward. Marrianas cells are recording at 59% which is up 11% from last week. The killer germ cells were 63% and the T-Cells 65% Marrs, so that is good news. We are very happy by the numbers. We are feeling a bit discouraged and frustrated even with the good news of the numbers. Its been a hell of a week with the intercranial pressure, which persists, and all the scary tests Simon has had to go through. We are thankful nothing worse than the increased spinal fluid has come from those tests but Simon is certainly not out of the woods. He continues to vomit and is very irritable. We suspect he is hungry but doesn't want to really eat and when he does, he vomits. Its very hard to watch week after week. They tell us time will help heal that but hes a 7 month old baby who has no interest in eating and its hard to watch someone so young vomitting all the time. I can't even explain what is has done to mine and Daves spirits. We are tired, and frustrated and lacking patience. Someone asked about us and the person replied "the sparkle in their eyes is gone". Its really so true. We have two beautiful daughters who feel this no matter how much we try to be normal and they try to act normal they see the fear, the pain, the frustration. All of it. Another weekend of "lets wait and see" which starts week 10 for us next week. I pray for a good beginning for that to start soon. Thank you God for the counts on Marrianas cells, please continue to bless us with those increases and please help Simon to be relieved of his gastro issues and able to eat and feel less irritated. Thank you all for your prayers. God Bless us All. Tracy and David I posted a few new photos, I'm sorry to say I can't get them bigger but wanted to share them with all of you.