March 27, 2006 at 11:04 PM EST

March 27, 2006 at 11:04 PM EST
Well today started with a smile. They told me they were going to start getting Simon off some iv meds to put him oral so we could try to go home sometime next week. I was so happy and almost in disbelief. Tomorrow will be 9 weeks since we came here. As I sit here tonight staring at my precious Simon my heart is very heavy and sad and scared again. While the day started out good it went south from there. We had to take Simon for an EEG to see if his brain waves were normal. That turned out okay but the neuro doctors are concerned with the bump on his fontinel that as I stare at his profile is very prominent tonight. They scheduled a CT scan with and without dye and a Spinal tap for the morning to rule out some things. They are looking for an infection in the brain, pressure that could be relieved by reducing some spinal fluid or perhaps a blood clot. We are so scared. It is somehow unbelieveable to us. Some of the meds he is on could be the cause, we just don't know. I barely had the strength to make it back to the room carrying Simon. It was like I was removed from myself and didn't even notice the hallways of the hospital. When I got to the room I just broke down. I couldn't beleive it. I wasn't expecting all of this, again. I pray for good news. For the tests to show all is normal and for Simon to continue to get better and smile tomorrow, as much as he smiled for me today. He was laughing at me as I danced with him and played with him today. We even introduced sweet potatoes into the diet today and he sorda liked them.

My body is exhausted but my mind is racing. Again, my friends, we ask for your prayers. Our son needs your strength as do his parents. I ask that you turn to prayer for us and Ask for Simons health to be fully restored and for the doctors to have guided hands and for all tests to show us that Simon is okay. Thank you. Tracy and David