March 12, 2006 at 08:55 PM EST

March 12, 2006 at 08:55 PM EST
Day +10
Well its been a rough weekend. Simon was dehydrated and his sodium jumped up again. He has been throwing up alot so that is what caused all of this. He is super crabby and not really wanting to be moved around. He is exhibiting signs of more skin problems to come. They think he might be having a bit of (GVHD) graft vs. host where the donors cells attack the recepient because they are foreign. They thought he had this before the transplant, which was baffling and very painful for Simon and the main or only reason he was put on morphine, so if its returning we pray it will be less intense and short lived. They do say if it is gvhd that may mean the cells are working. Who knows what to think. It is so sad and scary to see your six month old this way. And to have him not gain any weight but to lose it and weigh what a 2 month old would weigh. We are not sure what the next step will be with the nutrition but we are praying that Simon starts to recover and able to hold down his feeds and grow. He has diarrhea along with it so hes not retaining much.

His counts are slowly going up and we pray that when they do get past 1.0 the cells will be Marrianas only. So if you want a specific pray please pray that Simon has engraftment of 100% Marrianas cells forever. Thank you all for your support and friendship. Your words of encouragement help us get through the days. Tracy and David